http://www.wtflungcancer.com/diy-healthcare-the-project-all-patients-must-tackle/ My mom has lung cancer. She has never smoked. This is her journey. Tue, 07 Feb 2012 22:40:00 +0000 hourly 1 http://www.wtflungcancer.com/diy-healthcare-the-project-all-patients-must-tackle/#comment-363 Catharine Sat, 23 Jan 2010 01:11:59 +0000 http://www.wtflungcancer.com/?p=186#comment-363 Jennifer - I'm late commenting on your post, but I could not agree more. Bring an advocate or at least a second party whenever possible if you choose to be your own advocate. Take notes. My oncologist is good, but not perfect. He forgot the timing of one of the two drugs I am taking for Stage IV NSCLC and ordered it on what was supposed to be an "off" treatment day. I wasn't able to stop the infusion on that day, and it didn't harm me. However, I was able to show the doc my notes on his original plan for timing the drugs when I saw him for the next treatment, Now he seems to pay more attention to the actual schedule. (I get Alimta every 3 weeks; Zometa every 6 weeks -- maintenance therapy following 6 sessions of Carboplatin and Taxol.) Jennifer – I'm late commenting on your post, but I could not agree more. Bring an advocate or at least a second party whenever possible if you choose to be your own advocate. Take notes. My oncologist is good, but not perfect. He forgot the timing of one of the two drugs I am taking for Stage IV NSCLC and ordered it on what was supposed to be an “off” treatment day. I wasn't able to stop the infusion on that day, and it didn't harm me. However, I was able to show the doc my notes on his original plan for timing the drugs when I saw him for the next treatment, Now he seems to pay more attention to the actual schedule. (I get Alimta every 3 weeks; Zometa every 6 weeks — maintenance therapy following 6 sessions of Carboplatin and Taxol.)

]]> http://www.wtflungcancer.com/diy-healthcare-the-project-all-patients-must-tackle/#comment-48 Catharine Fri, 22 Jan 2010 21:11:59 +0000 http://www.wtflungcancer.com/?p=186#comment-48 Jennifer - I'm late commenting on your post, but I could not agree more. Bring an advocate or at least a second party whenever possible if you choose to be your own advocate. Take notes. My oncologist is good, but not perfect. He forgot the timing of one of the two drugs I am taking for Stage IV NSCLC and ordered it on what was supposed to be an "off" treatment day. I wasn't able to stop the infusion on that day, and it didn't harm me. However, I was able to show the doc my notes on his original plan for timing the drugs when I saw him for the next treatment, Now he seems to pay more attention to the actual schedule. (I get Alimta every 3 weeks; Zometa every 6 weeks -- maintenance therapy following 6 sessions of Carboplatin and Taxol.) Jennifer – I'm late commenting on your post, but I could not agree more. Bring an advocate or at least a second party whenever possible if you choose to be your own advocate. Take notes. My oncologist is good, but not perfect. He forgot the timing of one of the two drugs I am taking for Stage IV NSCLC and ordered it on what was supposed to be an “off” treatment day. I wasn't able to stop the infusion on that day, and it didn't harm me. However, I was able to show the doc my notes on his original plan for timing the drugs when I saw him for the next treatment, Now he seems to pay more attention to the actual schedule. (I get Alimta every 3 weeks; Zometa every 6 weeks — maintenance therapy following 6 sessions of Carboplatin and Taxol.)

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